I was visiting with a friend who is also experiencing Alzheimers with her husband, a man who is even younger than my Doug. We knowingly laughed and cried through some shared stories, bonding as only those can who are meeting some of the same continually-changing circumstances that go with this awful disease. I admire her tremendously – still having to work full time while managing things at home with grace. During our conversation she said two things that really resonated with me. The first – “I never knew I could be so lovingly patient” and second – “I feel like I’m constantly recalculating.”
I aspire to the first, and the second REALLY resonated! Recalculating indeed!
Remember the older stand-alone navigation devices we had before they were integrated into phones and car electronics? I had a Garmin Global Positioning System (GPS) that helped me out of many not-quite-sure-where-I-am-where-I’m -going-how-to-get-there situations. A key element of that device was the nasal-toned female voice saying “reCALculating” each time I made a wrong turn or missed an exit, then setting me back on the best path to reach my desired destination. It’s a scary feeling when you are in unfamiliar territory and unsure of your best course of action. That’s how life with my beloved husband feels almost every day. Perception for a person with Alzheimers – their reality- may be quite different from what is actually, factually occuring, and no amount of logic or correction is going to change that. There is no map for this tough terrain!
This is where my internal GPS comes in… the Guiding Presence of Spirit!
This spiritual navigation system helps me course-correct when a day isn’t going as planned, or an approach, a word, the usual connection isn’t having the desired effect. Doug’s brain just doesn’t often have the capacity to process incoming information in a logical, sensical way; it’s up to me to figure out how to present necessay directions to him to keep things on track in a safe, purposeful, forward-producing manner..recalculating!
Just breathe. Center. Affirm omnipresence.
Assess how significant is his understanding of the situation – most often it doesn’t matter if we reach a mutual understanding of the situation at hand. I can smile, say “OK, sweetheart, that sounds good,” and he is content. Doesn’t matter if it makes sense – it satisfies his need to be acknowledged at the moment. My outwardly calm demeanor is essential, and I can feel Spirit whispering “peace” into my heart which doesn’t feel at all calm in this foreign Land of Non-sense. Sometimes, the situation is more urgent, like when he is looking for a power tool to “fix” something or his keys to drive somewhere – usually to Ace Hardware! Doug isn’t driving anymore, and really doesn’t need to be using power tools, so…recalculating!
Denying his need to be useful and do something helpful, purposeful just escalates his urgency; diversion is invaluable. On the way to get the tool or the keys, we stop in the kitchen for a favorite snack or to give a treat to Maya, our dog, and the errand he was on is forgotten. Course- correction completed with no damage done. I feel Spirit guiding me in a good direction to avert potential harm in a loving way.
I could fill a page with examples of the need to change direction, to take a different turn, find a new exit. Each day brings new and different situations that require a new road to successfully reaching Doug; I constantly recalculate to achieve optimal outcomes, find the best approaches, and it feels like just as I discover something that is effective, the map changes. I’ve realized that even without a debilitating brain declining disease in the picture, life circumstances often necessitate the need for course-correction. We have to recalculate self-care, priorities, time-managment, relationships, work situations, the list is endless.
Thank God my GPS has an infinite Source of Power. And I continue to recalculate! Blessings!



